Wednesday, October 27, 2010


We're so proud to announce that our cookbooks are finally in! (I say "finally", but they actually got here before the original shipping date!) They came in 23 packages that weighed almost 1000 lbs...poor UPS guy!

So now what?! We're busy getting all the inserts ready & putting the tabs in, but they're ready for purchase. You can contact me or Dustin...or anyone in our family for the books, or you can click on the ADD TO CART button to the left.

If you need to place a big order, need clarification, or just have a general question please don't hesitate to ask! Our contact info is on the left under "Contact Us".

Thanks in advance for the help with our cookbook fundraiser!  Oh...and yes, they will be available to purchase at our benefit dinner on 11/13/10 as well! :o)

Friday, October 22, 2010

MRI & results

Well I decided we needed to go ahead & do the MRI earlier than January. There is a condition that people with nevi's can have. It's called NCM (neurocutaneous melanocytosis) & it can cause hydrocephalus, seizures, &/or developmental delays. Essentially NCM is a satellite nevus that's on the brain. For more info see the FAQ section to the left.

So we had an appt for 4pm Tues 10/19/10. We got there at 2:30pm, filled out paperwork, & then a nurse came & put some numbing cream on each of her feet & each of her hands...this was for the IV, so it wouldn't hurt when they poked her. At about 3:40pm they came out & said they were ready for her. The anesthesiologist showed us to her bed & he let me hold her the entire time. He took the cream off both of her hands & started her IV pretty quickly. She fell asleep within about 4 seconds while I was holding her. I layed her down & they put oxygen on her & then we had to leave because they were taking her back to the MRI machine. They said it'd be about 45 mins.

With the numbing cream on her hands before the MRI.

Waiting for her MRI.

Of course I couldn't do anything but watch the clock. 65 minutes later (at 4:45pm) they came out & got us so we could go back to see her. She was laying there so peacefully with the oxygen still on. They said that it took a little longer than expected because she was coughing so they had to stop & suction her out a few times.

At 5:15pm, 30 mins later, she started stirring & waking up. The nurse took her IV out pretty quickly & then I got to pick her up while she was waking up fully. She was such a cute little baby! She couldn't open her eyes fully & she just looked groggy. She was looking around like "what the heck is going on?!" My mom sat with her in the chair & fed her some apple juice, which she just loved!

Still groggy - drinking her apple juice.

About 1/2 hr later she was ok to leave. She sounded good to us, didn't cough at all, & was fully awake, so we left! About an hour or so later she was back to her normal self!

Later that night, right before bed.

They said the MRI would be read either that night or the next day. I waited & waited to hear the results but no word came. The next day (Thursday the 21st) I called the MRI place & they said they'd already faxed the results to my doctor's office. I verified the fax number but it was wrong!!!!! So I spent most of the day on the phone between the MRI place & my doctor's office trying to figure out where these results were. (I had to find out Thursday cause my doctor is closed I'd have had to wait until Monday...& I just couldn't do that!) Finally at about 4:45pm I got the results. She's free & clear of any spots on her brain! Everything looked healthy & normal!!! Now I just need to send the MRI to the specialist that reads it one more time just to make sure...and then we'll be good to go! :o)  Yay!

Friday, October 8, 2010


A friend of mine is graciously hosting a Tupperware party for Brooklyn's surgery fund! The party ends on 10/29/10. If you'd like any Tupperware the info is below:

You can either see a catalog from me if you're close to Lewistown. Or you can go online. The fundraiser link is:!twx$eparty_ctl.p_guest_welcome?pv_eparty=d71b71de65396d44257ed59292770379  and we get 50% of the profit from that. The catalog link is: & we get 25% from that. :o)

Contact me if you have any questions! :o)  And thank you, in advance, for your support!

Friday, October 1, 2010

Not even a FLINCH!!!!

Brooklyn needs to have her vaccines completed at least 2 weeks before each surgery, and then can't have any vaccines while her expanders are in, and then at least 2 weeks after each surgery. Because of this, we got her first flu shot today. Babies who haven't ever had a flu shot before (and who are young enough) get 2 shots. Today was her first one & I tell you what....she didn't even flinch! No crying, no tears, no whimpers, no NOTHING! I watched her get the shot so I know she did get it!!!! LOL  I can't believe it.

I'm amazed. ;o)   Her 2nd one will be the first week of November. Then we'll be vaccine-free until after her expanders are out at the end of March. So that's our story!!!

We leave for Chicago just 3 months from today...already. I can't believe time has gone by this quick. It'll be here before we know it. I'm busy getting together packing lists so we don't forget odd's & end's. Even still though I'm sure we'll be forgetting something.

Our cookbook proof will get to the company today. I'm crossing my fingers that the books will be shipped in a couple weeks now!!!