Our last Chicago post (well, for now anways)...and Brooke's 1st fill!

Wow, I can't believe how fast time has gone! Today we woke up so we could all go to the doctor's office for Brooklyn's very first fill. Unfortunately though, Dustin was sick! And Cali has had a fever off & on, but now she has a runny nose as well. So they stayed back while I took Brooklyn in to be expanded. It was unfortunate though cause neither of them got to say goodbye to the Melton's or the Moller's, both of which were also at the office.

The Melton's were there to have Josh checked out & to take him to the ENT. I haven't heard yet how that went, but will update when I hear.

The Moller's were there for Zac's first expansion too. They said it went great & they were alot better at it than they thought! We all said quick goodbye's so they could go to the airport & we could start fill #1.

We got the numbing cream on her ports & then had to wait an hour. So Brooklyn & I just hung out in the room & had a nice chat. ;o)


"I'm ready for my close-up, I mean my fill, Mr. Devill."  :o)

Mim, one of Dr. Bauer's nurses, came in & showed me how to do the fill. Then Susan, his other nurse, came in & pretended to be Dustin while Mim did the first fill & I did the second one. We got 8mL's in the forehead expander & 10mL's in the scalp one. We just took it easy today. I'll do this every week until I'm told otherwise. We can already see the expanders getting bigger, which is so weird to watch it grow infront of our eyes.

When we got back Brooklyn was sound asleep so I figured that was an opportune time to pack. Dustin tried the best he could to keep the girls away from me so I could pack. But it was still a challenge! It took me a good few hours. Dustin loaded the luggage bin on our car roof with stuff that we don't need (& that doesn't matter if it freezes) & then loaded the back of the car. So in the AM all we need to do is pack up the back seat & head out.

The people at this hotel have been very accommodating. They have let us keep our same rate for the next trip, so I went ahead & booked that for our March trip. I like this place. Plus, we signed up for their rewards points & she said that after this & the next trip we may be able to pay for the next 1-2 trips. So that's nice!

Well all we need to do tonight is pack up the computer, make dinner, & go to bed. It'll be an early night for us all since we're not feeling well --- well, except for Brooklyn, who is STILL not sick, which I can't believe! I'd rather be sick consistently than have her get sick even once. If she gets sick we have to postponne the fills. But if Dustin or I am sick then we just have to wear a mask.

So...so long from Chicago! My next post will be from another state...on our way home. (Which I still can't believe!!!) Right now though, I'm waiting to get out of here cause it's pretty lonely without our next door neighbors!

What?! Last "free" day in Chicago???

I absolutely can NOT believe that today was our last "free" day in Chicago. Wow has it ever gone by fast. And I'm sure it's gone by even faster since I'm not looking forward to going home. Today was our last free day, tomorrow is our big long doctor's appt, & then bright & early Tues AM we're outta here. WOW!! Skip the saying "Time fly's when you're having fun"...replace it with "Time fly's when you're in Chicago for surgery!"

Today we got up, took our time getting ready, & then we were all going to go to the mall. But then Dustin offered to keep Brooklyn...which was just amazing cause I had a feeling that having both girls would have been a disaster. I'd done it before, but for some reason today I could just tell that "Cali" & "meltdown" were in the same sentence.

So Amie & I packed in the car with Cali, Zoie, & Zac & headed to the mall that's the closest to our hotel - the one we'd gone to a few times before. We got there & ate, & then went to the toys so the girls could run. Well poor Cali...I think she was just so overwhelmed at all the kids. Mind you, it's Sunday, so everyone & their child was there in the play area. "Busy" was an understatement. She just didn't know what to do with so many kids. So instead of playing on the toys INSIDE the play area she decided to stick close to mom & play on the 1 toy just as you enter the area. Here she is:

Instead of playing where all the screaming, pushy kids were she decided that she, again, wanted to go on all the automated toys (yes...the ones that suck every quarter from the depths of your purse). So we did that for a bit:

When we were done there we just walked around, until the girls saw the train & just HAD to ride it again. But that's ok cause the guy rememberd us from last week so he let me ride for free. Here's Zoie & Cali (and yes, Cali IS smiling for a picture, see for yourself!!!)

We had major meltdowns before & after the train so we figured it was definitely time to go get dinner & go back to the hotel. We thought we'd eat in the dining area of the hotel as one "last supper", because the Moller's go home tomorrow. :( 

All-in-all, even with the meltdowns...today was a good day. Yes, I'm still sick, but like yesterday, my symptoms are definitely lessened because of all the stuff I'm taking. I'm going to miss this. Miss the wandering aimlessly at the mall not buying a THING & having a friend to walk with. Miss eating a new place every night & trying all the Chicago food. And especially miss our great new friends...friends who totally know what we're going through. But the light at the end of the tunnel: we'll all be back at the end of March. Us - on the 24th & them on the 31st - so we may not overlap, but we're certainly going to try if we can!! And then we'll all be back in August, so that'll be super nice. :)

On another note - more prayers are needed for Josh. They are still here but are going home tomorrow. We did get to see them last night for a short while but couldn't see them today because Josh has developed another fever --- again. Prayers for the ENT that they're going to tomorrow to figure out what's going on with him. He just needs to get better so they can get on with this whole process!

Sick in Chicago

Yes...that says Sick IN Chicago...not Sick OF Chicago. I started feeling like I was getting sick yesterday afternoon, but kept denying it...like I usually do. Unfortunately my body didn't like what my brain was saying, & I did end up getting sick. I've literally stuffed my body with pretty much all the medicine that I can, so my symptoms are definitely lessened, but it's still there, trying to make its way through. I'm stubborn though & am fighting it like crazy. Thank the Lord for husbands with medicine, OTC cold medicine, & me being a nurse! :o)


Brooklyn & Cali taking a bath. Don't worry America...Cali takes baths with a swim diaper on now...she's freaked out about pooping in the tub...

 So we really didn't do anything today. We got up & were going to go to a mall & walk around, but didn't end up doing that. Instead, we ate lunch at a mexican restaurant that the Melton's recommended to us (we went with the Mollers) & then came right back to the hotel. Cali & I took a nap & then when we got up the Melton's were here, next door with the Mollers checking out their room. They are scooping out places to stay the next times they're in town.


Don't bother me...I'm sleeping.

 We all hung out in the lobby area of the hotel. They actually have a little lounge area that we went to. Then the 3 guys went to a sports bar to watch tonights play-off game. Christine left with Josh around 8:30pm & that's actually right around the time that we noticed what time it was! We had no idea!!! So needless to say...we didn't get dinner. :(  But that's ok, we have plenty of popcorn to go around! :o)



Happy Brooklyn

 I was going to do one last load of laundry tonight when Dustin got home, but that's about an hour and a half task...& frankly, I just want to go to bed! So that'll wait till tomorrow. I can't believe that I'm actually talking about going home now. Believe it or not we just have 2 full days here. Tomorrow is our last "free" day, then Monday is our long appt where we learn how to do the fills, & then packing....and then Tuesday we leave. Wow it's gone fast.

Prayers are needed that no one gets sick...especially Brooklyn. If she's sick anytime during these next 11 weeks then we can't do any fills...at all. They can ONLY be done when she's well. So if she gets sick & we can't do the fills on Monday I don't know what will happen. Either we'll have to stay until she's better, or else hopefully they'll just show me how to do it & trust that I do it correctly since I'm a nurse. I guess we'll have to just wait till Monday & see. But just as I was typing that last sentence both my girls sneezed...how great! So prayers are needed to keep these little ladies healthy!!!

Exploring Chicago!!

What a great day we had today!! We decided to head to the SkyDeck today...& then do whatever else we thought would be fun. So we headed out (yes...in our CAR) at about 11am & headed for downtown Chicago. About 1/2 way there it was like a light bulb went off in my head...."Uhhhh we can't do the SkyDeck today! It's sooooo overcast outside & we wouldn't be able to see a thing!" So since it was getting close to lunch time we decided to go to the Hard Rock Cafe instead. Anyone that knows me knows that I love HRC. I go & get a t-shirt from every single one that I can find. So we couldn't pass it up. (It certainly didn't have to be this trip...could have been any of the other 4 trips here, but the opportune time came so we ran with it!!)

Our only dilemma was the parking in downtown Chicago. First off, there is a lot of places to park. But second off...it's soooo darn expensive! We toyed with the idea of taking the train again just cause we didn't want to go to point A & pay $20 to park. Then move to point B & pay $20 again to park. By the end of the day it could have been SOOO much, which we just can't afford.

So as we were driving around the block of HRC we noticed metered parking. We pulled into a space & Dustin got out to check it out. Thankfully a local was there & he got the "inside scoop" from them! LOL  Turns out you can pay as you go. So if you're only going to be in one spot for a short time then you can pay for that spceific amount of time. It ranges anywhere from 20 mins to 2 hrs. So Dustin put in 2 hrs, put the ticket stub on the dash, & we went on our way.

After lunch we thought that maybe we could do the SkyDeck if it cleared up...but it hadn't. So we decided that the SkyDeck may have to wait until the next trip. :(  Instead, we decided to go to Navy Pier. We knew nothing about the place, but thought we'd just go & see what it was. Well about 2 blocks in to the trip, Cali was asleep. We knew better than to wake her, so we just decided to drive around downtown Chicago & see what we could see.

We still drove to Navy Pier but there was hardly anyone around, plus all the parking was for cars about 6'8"...& we're 7'. So we thought that this was definitely a summer attraction. So we continued driving. We found Michigan Ave (the Magnificent Mile) so we drove up & back down that. Then we drove on Lake Shore drive (right along Lake Michigan). We saw an ice skating rink, lots of shops, TONS of Starbucks, & lots of little places that looked like they'd be great to eat at!

After an hour Cali woke up so we went back to Navy Pier one more time...to see if maybe she'd like to go to the Children's Museum or see the IMAX show. We found a parking attendant who directed us to the very last parking garage which was like 7'8". By the way...all these parking garages were amazing. They were all heated with garage-like doors that open & close for each car. They were NOT busy at all, which was nice, cause we got to park right by the door.

Remember, we knew NOTHING about this place. So we got out of the car, unloaded the stroller, & bundled everyone up cause we knew how cold it was outside. LOL Imagine our surprise when we walked through the doors & the entire thing was inside!!!!! YESSSSSSSSSS!!!!! Oh we were soooooooooo happy. So we took all our jackets off & just started walking. We were down at the far end of the pier, so we had the entire pier to walk. We just broused shops, eating places, kiosks, etc. It was such a great time. We found out that the Children's Museum is free on Thursdays, so that'll wait till we're here next time with Cali. I also looked into the IMAX which I thought Cali would love but they were only playing Tron...euw. So that was a no-go too.

We found a little kiosk in the middle of the asile that sold hand-knitted hats. They were just adorable. Pretty much the ONLY thing that I'd forgotten at home was a hat for Brooklyn. Of ALL things to forget, & I forget her hats! Duhhhh. So this whole trip I've had my eyes open for a good hat for her growing head. So we were browsing the hats & I asked the lady if they stretched, or if they had bigger ones. She was SUPER nice, but said that Brooklyn had a small head so why would we want a bigger hat? I then told her all about Brookie & her expanders, & the need for such a big hat. We picked one out (see below) & I tell you what...she's just adorable. And the lady even gave us $5/off cause of our "story".


Mommy & Brooklyn - with her new hat!

We continued walking around browsing the stores & shops. And then decided to make our way back to the car. On our way back Cali just happened to see the cute little train ride for kids...yeah, that literally just goes in circles. But for $2 how could we say no?


Cali riding the little train.

We went back to the car, got in, & started back for the hotel. We had needed to get diapers, wipes, & formula for a day or so & we were definitely not going back to the hotel until we had them in hand. There's a Super Target near our hotel so we went there, got our stuff, & came back to eat left-overs for dinner. Gotta love a super cheap day that's filled with lots of fun & great kids!!

On our way home we heard from Christine. Josh had his surgery this AM & they had gotten to go back to their hotel at 2pm! She said he was doing so much better this time around than he was 2 weeks ago. How great!!! Dr. Bauer even got to remove some of his nevus, which is even better. She wants to meet up tomorrow so we'll probably take it easy by going to the mall again & letting the girls run free. That certainly has helped in the past. :o)


The Adventure

"The Adventure - Part 1 - Home through the train ride"

A few days ago Amie & I were talking about the train that goes into Chicago from here. We heard it was like $5 & took you right to where you wanted to go. Sounded like a perfect plan to the $17 parking that Dustin & I had found a few days earlier. But then I got to thinking (& Amie did too) that maybe it wouldn't be such a grand idea...strollers that you have to fold up, possible cabs, lots of stuff to carry, etc etc. We decided against the train & thought driving would be the best. We thought that today we'd go to the aquarium. Great for the kids!!! Perfect.

Well...until this AM at 9:40 when she said that they decided to take the train & we needed to leave by 10am!!! LOL "OH crap!" I said. I had a twinge of anxiety right off the bat cause that means that we have to pack completely different than if we had the car. Consolidation. (Plus, we can't forget that she's still on antibiotics so we have to take that refrigerated.)

Anyways, we managed to get out of the room & into the car by 10:10am. But unfortunately that meant that the 10:26am train was missed & now we'd have to wait to 11:26am. No biggy once we got there cause we literally had to park like 1/3 mile away & then get tickets.

We waited for the train & had to fold up the strollers so that we could get on. This meant taking everything OFF the stroller, CARRYING it on the train, finding a place to sit, & then sitting there in utter misery waiting for the train to arrive. I was sitting on the seat with Brooklyn (IN HER SEAT) on my lap & Cali next to me, with Dustin & the stroller (mind you...this is a DOUBLE stroller) behind us. Thankfully Dustin took Brooklyn a little while after we started so that I could help with Cali.

So we get to our stop & now we have to UNLOAD! Not knowing the station or the area we had no idea if it would be a big waste if we folded out our stroller or if we should just keep it folded up. So there's Dustin: carrying both the folded up stroller & Brooklyn in her seat. And there's me: trying to hold Cali's hand (which is a feat in itself when she's in the I-don't-want-to-hold-your-hand-because-I-think-I'm-independent stage) with ALL of our stuff. We got out of the train arrival area & headed towards the doors.

I guess I just wasn't thinking.... no scratch that. I wasn't thinking. Cause I didn't realize we'd have to take a cab. I hate cabs. Me & cabs just don't get a long. I don't know why. I just hate them. So the aquarium that we're headed for is miles away...not walkable, especially in THIS weather.

"The Adventure - Part 1 - Home through the train ride"...although slightly difficult was a success. Check.



"The Adventure - Part 2 - From the station to the Aquarium"

So now we're at the cab dilemma. Do we take 2? Or should we just get a van that Bruce suggested....which was an excellent suggestion by the way...something I didn't think of. We decided that instead of waiting for a van, we'd just take 2. Sounds simple enough right? Haha, WRONG!

Poor little Cali...we just expect her to get in some strange car? Yeah right!!! I threw all of our stuff into the back seat & he folded up the stroller. I put Brooklyn in kind of behind the driver, sorta, & then got in next to her. Dustin practically had to throw Cali in the car kicking & screaming & then buckle her in & shut the door while I was holding on to her. She SCREAMED literally about 20 blocks in to the ride. Grrrr. There was nothing I could do to console her. Well this whole time little Brookie was sound asleep. Haha not anymore. Once Cali decided that she was going to be done crying, Brooklyn decided to take her place. She screamed the whole rest of the way to the aquarium. I tried a paci, I tried a bottle, I tried everything short of actually getting her out of her seat. UGH! I was so mad that Dustin was up front not doing a darn thing about it...(but really, what was he going to do from up there???)

"The Adventure - Part 2 - From the station to the Aquarium" - complete & total disaster. Simply stated. Check.



"The Adventure - Part 3 - The Aquarium"

So we get to the aquarium, unload, & then I let off a little steam... We paid, went in, looked at the fishy's, & then left. Hahaha, ok it was a little longer than that, but it was pretty uneventful (as in...no melt downs, no crazy behaviors worth writing about, & no horrible experiences). Cali had a ball. Brooklyn was great. Zoie loved it. Zac was wonderful. And all 4 parents were content.





Cali at the kids area. She loved touching all the fun things...& playing in the water of course!
Notice Bruce & Dustin also partaking in the hands-on experiences in the back! ;o)



Cali & Daddy watching the dolphins.



Cali playing in the submarine.

"The Adventure - Part 3 - The Aquarium"....soooo great. Check.



"The Adventure - Part 4 - Getting home"

When it was time to go we found a van taxi which was great...but SOOOO not legal! The City of Chicago could have made a fortune if they'd pulled us over. ;o)  (And that's all I'm gonna say about that.)  We decided to not get dinner yet (at the risk of temper tantrums & melt-downs) & just go back to the train, take the train back to where we came from, & get in our cars & find something to eat. We got to the station safely, thank the Lord. However, when we arrived we were too far over in the lanes for unloading. We should have been in the right 2 lanes but we were in the next one over...& there was a traffic jam. Perfect. So our brilliant driver says "Oh just get out here...I'll help you!" HA!! Ok then...we'll simply grab all of our crap, the strollers out of the back, & FOUR CHILDREN & exit the cab in the middle of the street! Riiiiight.

Well that's just what we did. The guy grabbed stuff, Dustin got strollers, I got Cali & Brooklyn, Amie got Zac, Bruce got Zoie (or at least I THINK that's what happened, cause it was all in the blink of an eye) & we were out of there. By then of course traffic was now moving & horns were honking in every which way. How appropriate.

Keep in mind that this is approximately 5:30-5:35-5:40'ish PM...RUSH HOUR!!!!!!! So naturally Union Station is jam packed. Dustin led the way & we all made our way inside the station. Dustin & I went to our immediate left to the same elevator that we'd came in on & didn't even look back, but the Moller's stayed to the right. Oops. But we didn't think anything of it when we were standing at the elevator & looked across the station to see them doing the exact same thing. To me it looked like we all pressed the elevator button at the same time. Easy. We'll just all go up & meet at the top right? Haha. Riiiiiight again! First off, Dustin & I stood in the elevator for a while trying to decide which floor we wanted. After waiting for about 20 seconds we finally figured out that the Metra floor was where we wanted to go. So we got off there & immediately looked to our left....but didn't see the Moller's come off the elevator. Well they must be stuck or something. So we waited. And waited. And waited. Huh. So I call Amie. Lo & behold they're already on a train?!? WHAT THE HECK?!!!!!!!!!!!!!! How on earth??? For a split second I thought they were teleported to a train cause there was NO way they made it there that quick!

So in a mad panic I hang up & just start doing a perimeter search...trying to figure out where we were & where we needed to go. (This is where my Amazing Race skills come in...) Some guy must have seen the look of total horror on our faces cause he came up to us & asked us where we needed to go. I showed him our train schedule & he was like "Oh I'm going near there...follow me." Oh how great. So we follow him to the even numbered tracks. (The odd numbered tracks were on one side of the building & the even numbered ones were on the complete opposite side.) He showed us how to check which train was ours, which was a HUGE help. He went on his merry way & we started walking down the hall trying to figure out which train was ours. We got to the end & no train. There was a conductor standing there & she asked us where we were going. I showed her our schedule & she said that we needed to go to the ODD numbered tracks! Oh how great.

She pointed us in the right direction & we were on our way. Apparently though we didn't look like we knew where we were going cause another man came up to us & asked us if he could help. Again, I showed our stuff to him & he showed us where to go. As soon as we came to the odd numbered tracks we immediately found our train, got on, & were on our way. We were one of the first ones on so we got 2 seats that faced each other, which was nice with Cali.

Once we got on Amie & I were texting to see what the heck happened! When we were trying to decide where to go in the elevator, they had already gotten on the elevator, gotten to where they needed to go, & gotten off. Then when they got off they immediately found a Help Desk & were on their way. They thought that we were in front of them, cause that's how we entered the building. So everything that could go RIGHT for them, did. But everything that could go WRONG for us, did. (They would have totally kicked our butts in The Amazing Race...)



Cali on the train - finally posing for a picture...with Daddy's hat!

 Anyways, we got on our train & got to where we needed to be. Little did we know though that Bruce was waiting for us as you get out of the train station so he could take us to our car cause it was just 21 degrees outside....which was SOOO nice of him. But we didn't know that so we went a different way out of the station & walked the 14 miles to our car! But they found us & then we were off to dinner.

By the time we got to eat all 4 kids were either asleep or almost there, & the wait was 1/2 hr, so we just decided to grab something & bring it back to the hotel.

"The Adventure - Part 4 - Getting home"....another complete & utter disaster x's 10!!! Check.



Dustin & I told ourselves we would NEVER do the train-thing again. But now we're reconsidering our decision cause the first time is always the worst, right? LOL I guess we'll see...

This awesome hotel...& Volume 2!!

I think I've mentioned before that this hotel is absolutely amazing. The staff, the room, the area, the amenities...everything. Tonight I was visiting Amie in her room & one of the staff brought down 2 stuffed animals for Brooke & Zac! How nice was that?!!! We spent a little time talking with her & she said that we can get this same rate the next time we come, which is a huge relief. We got a pretty good deal, so it's very nice to know that we can get this same great rate.

Also...today is officially Day #1 of Brooklyn's Best Volume 2!! I have officially begun making the book, as of today. :)  (Yeah...I know I'm slightly crazy...)

"I'm Drain Free!!"...& an awful set-back for our friends

We had a good day today. I had talked to Dr. Bauer's nurse Susan yesterday & we were supposed to continue with the drains just until this AM & if they were still draining just drops then they'd take them out today. I called her back today & she said to just come on in & they'd remove them...what a relief (for BOTH us & Brooklyn).

Last night was another bad night (well mainly super early this morning actually) cause Brooklyn kept pulling her dressing off her head....and YES she did have the restraints on. She's a clever little buggar! So it was definitely a relief to us & I'm sure she feels free now.

So we got to the office, got right in, & got those darn drains OUT!!! She didn't even flinch when they were pulled out...I was pleasantly surprised! We had a nice visit with Mim, Dr. Bauer's nurse & then we were on our way...drain free! We did have a little dressing on her head just for some slight oozing, but could take that off as soon as it stopped. We were going right to the mall for lunch as well so it was good that the dressing was on...cause her head was nasty!!!



Happy as a clam after her drains were out!

 We met the Moller's at the mall (our 3rd mall in just a few days)...but this mall was way more upscale!! I felt out of place wearing jeans! LOL  We had lunch & then the guys went to see True Grit. Amie & I took the girls to the play area, a big tree house, & sat there watching them drinking a Starbucks!



Cali playing at the big tree

 Oh...the best part of the day???? Finally finding a serve yourself frozen yogurt place!!!!! I've been looking for one of those places since we got here & couldn't find one anywhere. I just stumbled upon this one...& bought some immediately! LOL It was so darn amazing. Cali had her own too, which she also loved. (I'm teaching this kid well...) I will definitely be returning.

After letting the girls play for a while we started walking around, & the guys got done fairly soon after that. We decided that it was best that we leave cause Cali was starting to act up. She went in a shoe store & found the boots, took off her boots (cause they matched, of course), & added hers to the display, & then wanted to leave...THEN threw a fit when I tried to take her shoes & put them back on her. She was tired. Very...very...tired. We left & she was asleep literally even before we were out of the parking lot!

We got the most amazing dinner ever. I actually gave myself a stomach ache cause I was eating so fast. :)

....and then we got the bad news....

The Melton's had a tough time with Josh's sutures over the past few days. About 6 days after surgery it looked like one of his stitches popped open. They called the office but didn't really think anything of it since it was so small. Unfortunately though it continued to grow & grow...& now it's a hole big enough that you can see the actual expander through. :(  They just went home yesterday, remember. And now.....they are coming back tomorrow (Thursday) for surgery on Friday to remove both of the expanders. They will give him enough time to heal up & then can start the whole process over in May. If there's ANY possible good news from this, is that even with the small amount of fluid that he has in the expanders now, Dr. Bauer will be able to remove some of his nevus! So that is good, even from a horrible situation. I think I'm still in denial about it all cause they just went home yesterday! I can't even believe that this is happening to them. I feel SO horrible for them cause I can't do a darn thing about it. :(  So please keep them in your thoughts & prayers. This is definitely an eye-opener that anything can happen at any time.

As for us, Brooklyn had her first head-washing tonight & boy did she L-O-V-E it. She liked it SO much that she actually almost fell asleep as I was massaging her head. I gently rubbed over the stitches & she didn't even flinch, thank goodness. Once we got done & her hair dried I realized that we need to do it again cause all of her nevus hair is still sooooo greasy from all that Bacitracin. So another head-washing is in the works for tomorrow...


Laying there like a good girl getting her head washed...& boy did she ever LOVE it!

So that's our day. Tomorrow??? We're going to the Aquarium. The kids will absolutely love it & I'm pretty excited to see the expressions on their faces! Please remember to keep our friends the Melton's in your thoughts & prayers...

And then there were 2...My great friends

And then there were 4...
When we arrived in Chicago there were 4 families here scheduled for surgery with Dr. Bauer. (Well 4 of us that are great friends that know each other. There are probably more here that we just don't know of...) Anyways, we had that get together on the 3rd, the day after we got here.

4 families attended:

The Nagel's: Mom Beth & Dad Carl (who unfortunatley wasn't able to come) have sons Lincoln & Sully. Lincoln is the older brother & Sully is the one who has had surgeries. He has a back nevus that goes to his neck. He's had 2 rounds so far (2 expander insertion surgeries - like Brooklyn just had, and then 2 removal surgeries). Beth decorated these cookies for the party...how adorable!!

And this is her son Super Sully:

This is why Beth is so great. Beth was the very first person I'd "met" on the Nevus Outreach Yahoo! Support Group. She welcomed me, answered some random questions of mine, & told me all about the cookbook that she made as a fundraiser. So she's the reason I did the cookbook. She has answered any questions I've had about anything, especially the cookbook! She also went solo to the Nevus Outreach Conference in Dallas & we were just a couple rooms away from each other, so we got a lot of time to get to know each other. She helped me "fix" my blog so it wasn't so boring, too! :o)

Follow the Nagel's progress here: http://newsfromthenagels.blogspot.com/
The Nagel's left Tues the 4th to head back home to the Sioux Falls, SD area.... And then there were 3.


The next family is the Melton's: Mom Christine & Dad Adam have older sister Katie & younger brother Joshua. Joshua is the nevus-owner in this family. Josh's surgery was just 1 week (to the day) before Brooke's. His nevus is also on his back, but instead of going north to the neck it goes south to his bottom. He had 2 expanders inserted in this surgery...& this one was also his first, just like Brooklyn.

I "met" Christine also on the NOI support group site. She, like Beth, also welcomed me. And she, like me, was also pretty new to the site. I could tell there was something about Christine that I liked...that she was a lot like me! LOL I was able to meet Christine, Adam, & Josh in person at the NOI conference as well. After the conference we talked a lot...through email & on the phone. She also decided to do a cookbook so we tackled the project together. It was so nice to have a partner in crime when working on the book. Any questions I'd had, she'd already found the answer to...& vice versa. She's pretty much just as anal/organized as I am...so it works out great! :o)

This is her husband Adam & their son Josh:

And here's Adam with Josh & Dustin with Brooklyn...& their capes of course! They love talking sports (the dads, not the babies)! :o)

Follow the Melton's progress here: http://www.journeyswithjoshua.com/

The Melton's left today to head home to Phoenix...And then there were 2.

One day a couple months ago Christine sent us all an email telling us about a new nevus family who she was made aware of. They live just 15 mins away from her (WOW!) and their son was born just days before Joshua (DOUBLE WOW!!). They are the Moller's: Mom Amie, Dad Bruce, older daughter Zoie, & younger son Zac. Zac is the nevus-owner (proudly nicknamed Wolfy) & his is also on his back but wraps around slightly to the front on one side. I added Amie as a friend on Facebook & we started writing back & forth. Then to all of our surprise, Zac's surgery was scheduled for the same day that Brooklyn's was!! This immediately connected us more, as we both needed to find hotels & both would be in the exact same boat at the exact same time! I hate that other families have to go through this, but am SO blessed that we have another family to go through this with together.

Here is Amie & Zac (aka Captain Happy) with his cape on:

We have spent the past couple months getting to know each other by checking out hotels, comparing prices, & finding stuff to do in the area to keep us occupied, since we'll both be here for 2 weeks. I "officially" met Amie Monday the 3rd, which was the day they got in. The hotel put us right next door to each other, which has been great. We made a pact just a day or so after getting here that we won't feel bad if our babies cry in the middle of the night...cause it's someone we know next door, not a perfect stranger. Our daughters have had a ball swimming together & playing with their babies (dolls...not their baby brother & sister...haha). Unfortunately because they live so far away in AZ, they had to fly so they could only bring a limited amount of things, so Zoie has had a blast coming over & watching movies with Cali & playing together with her toys. You've read all the things we've done together since we've been here so I won't repeat them...but it's definitely been so nice to have someone to talk to for me, someone for Dustin to watch football with, & someone for Cali to play with. Follow the Moller's progress here: http://checkingbackwithzac.blogspot.com/

Here's Brooklyn & I when she opened her cape:

And here's us all together:



In the back: Christine with Josh and Amie with Zac (and Zoie is in front of her!)
In the front: Beth (minus Sully) and Me with Brooklyn

So that's that. We're down to 2. The Moller's leave Monday & we're leaving Tuesday bright & early. We're busy planning again: on things that we can do to occupy our time before we leave!

Exploring New Places...And the BIG REVEAL

I didn't write yesterday on what we did cause I was just too tired last night!

We got up & ate breakfast, then went to the same mall that we'd gone to the day before. Cali just needed to get out & run. The mall has a nice-sized kids play area & even a train that goes around the 2nd floor of the mall. So we got Cali out & let her run!!! The Moller's met us there - So Cali & Zoie could play together. They had a ball. I then took them on the train, which of course they loved!

Playing on the toys...& having a ball!

After playing on the toys they wanted to go on all the little automated riding toys that suck up every last quarter you have in the deep, dark depths of your purse. Cali went on the little ice cream truck, the space ship, & the ice cream truck again. She tried going on the simulated roller coaster ride but got freaked out about 10 seconds into it so she quickly got off & we watched Zoie ride it.

After the mall we went to ANOTHER mall...that apparently was the largest mall in the world before the Mall of America was built. It was 4 floors of absolute amazement. I didn't see it but Dustin said they had a play area that totally trumped the other one we were at. We may have to go back to this place! Anyways, the reason we went was to have dinner at the Rainforest Cafe with the Moller's & Melton's. The Melton's are all done & left for Phoenix today. Their surgery was just 1 week before Brooklyn's. I can't believe their time is up already!

We had a nice dinner & then came back to the hotel. Now, anyone that knows me knows that I L-O-V-E frozen yogurt. I actually love frozen yogurt WITH my rainbow sprinkles. A friend of mine found a place that we had thought was one of those serve-yourself places. Wrong. Gosh darn it! That's all I want. That's all I NEED!!!! This place had just 1 flavor, but tons of toppings. So I got plain yogurt with pineapple & coconut, since they didn't have any sprinkles, grrr! But to my surprise, when I tried the yogurt I found out it was the original tart flavor...which I LOVE. So at least part of it was great!

And now the moment you've all been waiting for. Last night we had to change Brooklyn's entire dressing again. Oh...I guess a side note here: I heard back from Dr. Bauer's office at 5:15pm about her drains. I didn't hear my phone since we were at dinner, but they said that they wanted to talk to me tomorrow (today) & see how they were draining...& said that even IF she pulled them out, that nothing would be done about it. So I was thinking that maybe they'd just happen to fall out last night...snicker snicker! Hehehe. Well imagine my disappointment this AM when one tube was 1/2 FULL!! UGH!!!!! It hadn't been changed in 15 hours (totally my bad) but still, there was a lot in there. This immedately put me in a bad mood cause then there'd be no way we could have them removed today. I wasn't going to call them today, but Amie said that they were kind of waiting for my call. (They had to take Zac in today for a dressing change.) I decided to call them anyways, & she said that we should wait until tomorrow & basically if it's still just putting out drops then we can have them removed tomorrow!!!!!! YAY! This was the best news in days! :o)  So we're continuing to change them every 4 hours as usual & then I'll call the office in the AM & hopefully they'll have us come in to get those darn pains-in-the-booty out!

Anyways, here's the picture of little Brooklyn's head with her dressing completely off. I hope none of you have a weak stomach:


The head expander is on the far left, along with the stitches & drain. The forehead expander is on the far right of the picture along with the stitches. That drain is to the back of the picture. And yes, her nevus hair is disgusting. Her head can't be washed cause of all the incisions so it's pretty horrible.

 So there it is!!! There are 30 cc's in each expander right now...& they're only to get bigger!

You've Got Mail!

Imagine my surprise when I went up to the front desk today & they said that I got mail today! WOW....I got mail in a hotel?! I do admit...I felt kinda special. ;o)

It was such a nice card from a great couple who has been friends of our family for quite a while now... Dave & Jeanne Peeler. How nice of them to send us a card. We really do appreciate it. :o)

Here's a couple adorable pictures from last night...



Even though her eyes are closed, this is still one of my favorite pictures of her!!



And here we are with our eyes open...well one eye at least!